Last week, I became a human guinea pig by agreeing to be a test subject for a new drug that may help people with fibromyalgia. Naturally, because this
is a new drug, my family is rather worried about me taking part in this clinical trial, since at this point, no one knows: (1) whether or not this new drug will even treat fibromyalgia, and (2) what its long-term side-effects might be, either way.
So, why did I agree to be one of the test subjects? Mainly because I live with pain and fatigue on a daily basis---both of which are immeasurably worsened by stress---and like all people with an illness, I would like to get well and to help others with my illness get well, too. For one thing, constant pain and fatigue make it difficult for me to concentrate on writing and to work for long periods at a time---and many of my friends with fibromyalgia can't work at all (the "lucky" ones are receiving disability benefits).
This isn't the first time I've tried a new drug for fibromyalgia---although it is the first time I've tried one that wasn't yet even on the market. But since many of the drugs I have tried in the past are now under federal scrutiny for causing heart attacks, strokes, and other undesirable side-effects, I know that just because a drug actually
is on the market doesn't necessarily mean it's safe.
Since the clinical trial I'm taking part in is a double-blind study, none of us knows who has got the genuine medicine and who has got the placebos. Only time will tell. So far, I haven't seen any change in my physical condition. So, either: (1) the genuine medicine is not working for me, or (2) I'm taking a placebo and not subject to the euphoria that sometimes results when you only
think you are getting a genuine medicine that will help you.
At any rate, for obvious reasons, I've been thinking quite a bit about guinea pigs lately, and I've reached the conclusion that perhaps I've always been a guinea pig...that all creative artists are, in some fashion, guinea pigs taking part in ongoing experiments. Every time we write a book, paint a painting, record a song, star in a movie, etc., we never know what the outcome is going to be---whether critics and the public are going to like or loathe the finished product, whether what we have produced will be judged a success or a failure.
In concert with all this, I've also thought a great deal about the period right after I sold my first novel. I was teaching interpersonal communication at the university level then, and one day, one of my friends and colleagues dropped by my office to congratulate me on selling my first book. Much to my surprise, one of the things he said was how much he admired my courage. I was puzzled by the comment---until he explained that he believed that one needed a lot of guts to put something out there for the whole world to read and critique, that one needed a lot of guts to be willing to take the chance that while one's work might well be a wonderful public triumph, it might also be a disastrous public flop.
To be honest, like many writers, I never even considered that while writing my first novel. I simply wrote for myself---a story I wanted to tell. It was only after the book was actually published and the reviews and reader reaction began to come in that I fully grasped what my friend and colleague had been trying to tell me: I had embarked on a career that would, in many respects, be very similar to the clinical trial in which I am now taking part---and whose outcome (good or bad) I would never be able to predict.
Now, I understand that this is something that we who are creative artists simply accept and live with on a daily basis. Do we consciously think of ourselves as guinea pigs? No, I doubt it. I know I never did before. But now, I realize that is exactly what we are.
I'm taking part in the clinical trial because I want to help myself and I want to help others with fibromyalgia. I write because I like to entertain myself with stories and I like to entertain others with stories, as well. Maybe this new drug won't help me or anybody else, either. Maybe my stories won't entertain me or anybody else, either.
But being a guinea pig, that's a risk I'm willing to take. I don't know if that makes me courageous, as my friend and colleague once said, or just plain foolish.
But that, too, is a risk I'm willing to take.